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Health Care Disparity Case Study

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Health Care Disparity Case Study
Having witnessed the perils of health care disparity, I will provide motivation and a valuable perspective within the University of Colorado’s Physical Therapy Program on the importance of bridging health disparities. At seven years old, my twin sister, Addie, was unexpectedly diagnosed with acute renal failure. As a result, she and my mom traveled 500 miles to Seattle Children’s Hospital because no adequate pediatric care was available closer to our home. They spent next four years primarily at the hospital with several short-lived discharges home. When my sister’s gastrostomy tube (G-tube) was displaced while home, my parents brought her to the local hospital for a replacement. However, they did not have a pediatric tube, so they sent her

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    References: 1) McAllister, J.W., Cooley, W.C, Presler, E. Practice-Based Care Coordination: A Medical Home Essential. Pediatrics, Volume 120, Number 3, September 2007, e1e11. 2) American Academy of Pediatrics, Medical Home Initiatives for Children with Special Health Care Needs Project Advisory Committee. The medical home. Pediatrics, 2002; 110:184-186. 3) American Academy of Pediatrics, Committee on Children with Disabilities. Care Coordination: Integrating Health and Related Systems of Care for Children with Special Health Care Needs, Pediatrics, 1999, Vol. 104:978-981. 4) American Academy of Pediatrics, Division of Health Policy Research. Periodic Survey of Fellows #44. Health Services for Children with and without Special Needs: The Medical Home Concept Executive Summary. Elk Grove Village, Illinois: American Academy of Pediatrics; 2000. Available at: www.aap.org/research/ps44aexs.htm. Accessed April, 2005. 5) Antonelli, R., Antonelli, D., Providing a Medical Home: The Cost of Care Coordination: Services in a Community-Based, General Pediatric Practice. Pediatrics (Supplement) 2004; Vol. 113: 1522-1528 6) Cooley, W.C. and McAllister, J.W. Building Medical Homes: Improvement Strategies in Primary Care for Children with Special Health Care Needs. Pediatrics (Supplement) 2004; 113: 1499-1506. 7) Davis, K., Transformation Change: A Ten Point Strategy to Achieve Better Health Care for All. The Commonwealth Fund. Accessed at www.cmwf.org April 13, 2005. 8) Family Voices. What Do Families Say About Health Care for Children with Special Health Care Needs in California: Your Voice Counts. Boston, MA: Family Voices at the Federation for Children with Special Health Care Needs; 2000. 9) Future of Children, Health Insurance for Children; Care of children with Special Health Care Needs. Key Indicators of Program Quality. Available at www.futureofchildren.org/information2827/Accessed April 13, 2005. 10) Horst, , Werner, R., & Werner, C. (2000) Case management for children and families Journal of Child and Family Nursing, 3, 5-14. 11) Langley, G.J., et al. The Improvement Guide: A Practical Approach to Enhancing Organizational Performance. Jossey-Bass, San Francisco, 1996. 12) Lindeke, L. L., Leonard, B.J., Presler, B, Garwick, A, Family-centered Care Coordination for Children with Special Health Care Needs across Settings. Journal of Pediatric Health Care, Vol. 16, No. 6, November/December, 2002, 290-297 ** 13) Presler, B. (1998, March/April) Care Coordination for Children with Special Health Care Needs. Orthopedic Nursing, (Supplement), 45-51.…

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