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Framework for Dementia Quality of Life Assessment with Assistive Technology Intervention

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Framework for Dementia Quality of Life Assessment with Assistive Technology Intervention
Proceedings of the 7th IASTED International Conference Biomedical Engineering (BioMED 2010) February 17 - 19, 2010 Innsbruck, Austria

FRAMEWORK FOR DEMENTIA QUALITY OF LIFE ASSESSMENT WITH ASSISTIVE TECHNOLOGY INTERVENTION
Carrie B Peterson, Neeli R Prasad, and Ramjee Prasad Center for TeleInFrastruktur (CTiF) Aalborg University Denmark {cbp; np; prasad} at es.aau.dk ABSTRACT This paper proposes a theoretical framework for a Quality of Life (QOL) evaluation tool that is sensitive, flexible, computerized, and specific to assistive technology (AT) for dementia care. Using the appropriate evaluation tool serves to improve methodologies that are used for AT assessment, development and improves the understanding of how health technology outcomes affect overall care. It will largely serve to develop the competence of technology assessments through a more efficient procedure for evaluation. One of the many challenges to assessing QOL is that results are subjective and difficult to analyze in an objective, empirical manner. This paper accentuates that this is not a hindrance to measuring OQL, but could be emphasized and adapted to create a precise measurement tool; the end-user voice must be sought and empowered in determining functional definitions and indicators for QOL. Current QOL measures inspired recommendations for a future assessment tool in order to assist investigators and clinicians in selecting the optimal method for their needs. The proposed framework is evaluated by means of a theoretical analysis focused on future applications, with particular regard to the influx in assistive technologies and their implications as therapeutic interventions for dementia care. KEY WORDS Quality of Life, dementia and assessment tools overburden social programs, health care, and financial systems, research into aging, housing, and care methods is invaluable. Dementia can occur in anyone, at any age, resulting from injury or disease, although it is most commonly associated



References: [1] ISISEMD Intelligent System for Independent Living and Self-Care of Seniors with Cognitive Problems or Mild Dementia. http://www.isisemd.eu/, 2009-2012. [2] World Health Organization, Division of Mental Health, WHO-QOL Report No. 100, 1995. [3] Leslie A. Lenert & John C. Hornberger, Computer-Assisted Quality of Life Assessment for Clinical Trials, American Medical Informatics Association Annual Symposium Proceedings, 1996, 992-996. [4] T.L. Sims, A.M. Garber, D.E. Miller, P.T. Mahlow, D.M. Bravata, & M.K. Goldstein, Multimedia Quality of Life Assessment: Advances with FLAIR, American Medical Informatics Association Annual Symposium Proceedings, 2005, 694-698. [5] M.D. Goldstein, D. Michelson, A.E. Clarke, & L.A. Lenert, A Multimedia Preference-Assessment Tool for Functional Outcomes, Annual Symposium on Computer Applications in Medical Care, 1993, 844-8. [7] S. Katz, Assessing self maintenance: Activities of daily living, mobility and instrumental activities of daily living, Journal of the American Geriatrics Society, 31(12), 1983, 721-726. [8] M.P. Lawton, & E.M. Brody, Assessment of older people: selfmonitoring and instrumental activities of daily living, The Gerontologist, 9, 1969, 179-186. [9] M.P. Lawton, K.S. VanHaitsma, M. Perkison, & K. Ruckdeschel, Observed Affect and Quality of Life in Dementia: Further Affirmations and Problems, Journal of Mental Health and Aging, 1999. [10] Rebecca E. Ready, & Brian R. Ott, Quality of Life Measures for Dementia, Health Quality of Life Outcomes, 1(11), 2003. [11] Giuseppe Riva, Pierpaolo Loreti, Massimiliano Lunghi, Francesco Vatalaro, & Fabrizio Davide, Presence 2010: The Emergence of Ambient Intelligence, (Amsterdam, IOS Press, 2003). [12] Independent Living Institute, Accessed 4 June 2009, http://www.independentliving.org/indexen.html, 2003. [13] National Aging in Place Council, Accessed 12 June 2009, http://www.naipc.org/NAIPCHome/tabid/36/Default.aspx, 2008. [14] Institute of Medicine Staff, Care of the Elderly Patient: Policy Issues and Research Opportunities, National Academies Press, Washington, DC, 1989. [15] Rebecca G, Logsdon, Laura E. Gibbons, Susan M. McCurry, & Linda Teri, Assessing Quality of Life in Older Adults with Cognitive Impairment, Psychosomatic Medicine, 64, 2002, 510-519. [16] Schölzel-Dorenbos, et al., Evaluating the Outcome of Inteventions on Quality of Life in Dementia: Selection of the Appropriate Scale, International Journal of Geriatric Psychiatry, 22, 2007, 511-519. [17] Susanne Cahill, et al., ’I Know Where This is Going and I Know it Won’t Go Back,’ Hearing the Individual’s Voice in Dementia Quality of Life Assessments, Dementia, 3(3), 2004, 313-330. [18] Rose-Marie Dröes, et al., Quality of Life in Dementia in Perspective, Dementia, 5(4), 2006, 533-558. [19] J.L Novella, et al., Evaluation of the Quality of Life in Dementia with a Generic Quality of Life Questionnaire: The Duke Health Profile, Dementia and Geriatric Cognitive Disorders, 12, 2001, 158-166. [20] Robert Costanza, et al., An Integrative Approach to Quality of Life Measurement, Research, and Policy, Sapiens Journal, 2008, 17-21.

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