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Interstitial Cystitis: a Little Known Disabling Disease

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Interstitial Cystitis: a Little Known Disabling Disease
Interstitial Cystitis: A Little Known Disabling Disease

I was recently diagnosed with a condition called Interstitial Cystitis and it has drastically changed my life. I am unable to do basic everyday things that I previously took for granted. I cannot leave my house for extended periods of time. I am unable to walk or be on my feet for more than an hour at a time. The pain caused by this condition is constant and very difficult to manage, as are the other symptoms of the disease which include frequency and urgency of urination. Due to these circumstances I have been unable to work, but due to the fact that this condition is not common and most people don 't know about it, I have had difficulty in having it considered a legitimate disability.

I plan to describe Interstitial Cystitis and how it effects daily living. I will also address the limitations that many patients face including those on physical activities, driving, and working. By reviewing the symptoms I will show that IC is a debilitating disease that should be considered a disability.

What is Interstitial Cystitis?

Interstitial cystitis (IC) is a condition that results in recurring discomfort or pain in the bladder and the surrounding pelvic region. The symptoms can vary from person to person and even in the same individual. People experience discomfort, pressure, tenderness, or intense pain in the bladder and pelvic area. Symptoms may include an urgent need to urinate (urgency), a frequent need to urinate (frequency), or a combination of these symptoms. Pain may change in intensity as the bladder fills with urine or as it empties. Women 's symptoms often get worse during menstruation. They may sometimes experience pain with vaginal intercourse. (Moldwin, 12) Because IC varies so much in symptoms and severity, most researchers believe that it is not one, but several diseases. In recent years, scientists have started to use the term painful bladder syndrome (PBS) to describe



Cited: "Forum." Interstitial Cystitis Advice. 2007. . 5 Mar. 2007 http://icadvice.com/node/245. Moldwin, Robert M. The Interstitial Cystitis Survival Guide: Your Guide to the Latest Treatment Options and Coping Strategies . Oakland, CA: New Harbinger Publications, Inc., 2000. Simone, Catherine M. To Wake in Tears: Understanding Interstitial Cystitis . Kearney, NE: Morris Publishing, 1998. SSA Announces New Ruling for Interstitial Cystitis." IC Network. 2006. . 15 Mar. 2007 http://www.ic_network.com/newsroom/ssa03.html. "The IC Patient 's Brief Guide to SSA Diasability Insurance." IC Network. 2007. . 5 Mar. 2007 http://www.ic_network.com/handbook/disability.html.

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