Preview

Autism Coping

Better Essays
Open Document
Open Document
8041 Words
Grammar
Grammar
Plagiarism
Plagiarism
Writing
Writing
Score
Score
Autism Coping
J Autism Dev Disord (2010) 40:1485–1494 DOI 10.1007/s10803-010-1001-3

ORIGINAL PAPER

Sense of Coherence and Coping with Stress Among Mothers and Fathers of Children with Autism
Ewa Pisula • Zuzanna Kossakowska

Published online: 2 April 2010 Ó Springer Science+Business Media, LLC 2010

Abstract The purpose of the study was to compare the level of sense of coherence (SOC) in parents of children with autism and in parents of typically developing children, and to examine the association between SOC level and coping strategies. Two questionnaires were used: Sense of Coherence Scale (SOC-29) and Ways of Coping Questionnaire. Parents of children with autism had a lower level of the total SOC, meaningfulness, and manageability compared with controls, and used escape-avoidance coping more often. No differences in SOC level were found between mothers and fathers. In parents of children with autism the SOC level was positively associated with seeking social support and self-controlling, and negatively with accepting responsibility and positive reappraisal. Keywords Autism Á Coping Á Parents Á Sense of coherence

Introduction Parenting a child with autism poses a number of difficult challenges. Research results show that parents of these children experience a significant amount of stress (e.g., Abbeduto et al. 2004; Duarte et al. 2005; Konstantareas and Papageorggiou 2006; Montes and Halterman 2007). They experience more stress not only compared with parents of typically developing children, but also compared with parents of children with other developmental dis´ abilities (e.g., Baker-Ericzen et al. 2005; Holroyd and
E. Pisula (&) Á Z. Kossakowska Faculty of Psychology, University of Warsaw, Stawki Str. 5/7, 00-183 Warsaw, Poland e-mail: ewa.pisula@psych.uw.edu.pl

McArthur 1976; Pisula 2007; Schieve et al. 2007; Yamada et al. 2007). The main burdens experienced by parents of children with autism include fears for their children’s future prompted by the fact



References: Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254. Antonovsky, A. (1987). Unravelling the mystery of health: How people manage stress and stay well. San Francisco, CA: JosseyBass. Antonovsky, A. (1992). Can attitudes contribute to health? Advances: The Journal of Mind-Body Health, 8(4), 33–49. Antonovsky, A. (1998). The structure and properties of the sense of coherence scale. In H. McCubbin, E. Thompson, A. Thompson, & J. Fromer (Eds.), Stress, coping and health in families: Sense of coherence and resiliency (pp. 21–40). Thousand Oaks, CA: Sage. (Resiliency in Families Series). Austin, V., Shah, S., & Muncer, S. (2005). Teacher stress and coping strategies used to reduce stress. Occupational Therapy International, 12(2), 63–80. ´ Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, L. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research & Practice for Persons with Severe Disabilities, 30(4), 194–204. Bishop, S. L., Richler, J., Cain, A. C., & Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation, 112(6), 450–461. ¨ Bolte, S., & Poustka, F. (2006). The broader cognitive phenotype of autism in parents: How specific is the tendency for local 123 J Autism Dev Disord (2010) 40:1485–1494 processing and executive dysfunction? Journal of Child Psychology and Psychiatry and Allied Disciplines, 47(6), 639–645. Bolton, P., Pickles, A., Murphy, M., & Rutter, M. (1998). Autism, affective and other psychiatric disorders: Patterns of familial aggregation. Psychological Medicine, 28(2), 385–395. ´ Briskman, J., Happe, F., & Frith, U. (2001). Exploring the cognitive phenotype of autism: Weak ‘‘central coherence’’ in parents and siblings of children with autism: II. Real-life skills and preferences. Journal of Child Psychology and Psychiatry, 42(3), 309–316. Cohen, O., & Dekel, R. (2000). Sense of coherence, ways of coping, and well being of married and divorced mothers. Contemporary Family Therapy, 22(4), 467–485. ´ Dabrowska, A. (2003). Poczucie koherencji u rodzicow dzieci z ˛ ´ mozgowym pora_ eniem dzieciecym [Sense of coherence in z ˛ parents of children with cerebral palsy]. Psychiatria Polska, 41(2), 189–201. Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427. Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52. Eriksson, M., & Lindstrom, B. (2005). Validity of Antonovsky’s sense of coherence scale: A systematic review. Journal of Epidemiology and Community Health, 59(6), 460–466. Feldman, M., McDonald, L., Serbin, L., Stack, D., Secco, M. L., & Yu, C. T. (2007). Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay. Journal of Intellectual Disability Research, 51(8), 606– 619. Folkman, S., & Lazarus, R. S. (1988). Manual for the ways of coping questionnaire. Palo Alto, CA: Consulting Psychologists Press. Folkman, S., Lazarus, R. S., Dunkel-Schetter, C., DeLongis, A., & Gruen, R. (1986). Dynamics of stressful encounters: Cognitive appraisal, coping and encounter outcomes. Journal of Personality and Social Psychology, 50, 992–1003. Glidden, L. M., Billings, F. J., & Jobe, B. M. (2006). Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 949–962. Goin-Kochel, R. P., & Myers, B. J. (2005). Parental report of early autistic symptoms: Differences in ages of detection and frequencies of characteristics among three autism-spectrum disorders. Journal on Developmental Disabilities, 11(2), 21–39. Gottlieb, A. (1998). Single mothers of children with disabilities: The role of sense of coherence in managing multiple challenges. In H. I. McCubbin, E. A. Thompson, A. I. Thompson, & J. E. Fromer (Eds.), Stress, coping, and health in families: Sense of coherence and resiliency (pp. 189–204). Thousand Oaks, CA: Sage. ¨ Grøholt, E. K., Stigum, H., Nordhagen, R., & Kohler, L. (2003). Is parental sense of coherence associated with child health? European Journal of Public Health, 13(3), 195–201. Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47(4–5), 231–237. Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336. ´ Hedov, G., Anneren, G., & Wikblad, K. (2000). Self-perceived health in Swedish parents of children with Down’s syndrome. Quality of Life Research, 9(4), 415–422. Herring, S., Gray, K., Taffe, J., Tonge, B., Seeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with 1493 pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882. Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down’s syndrome and childhood autism. American Journal of Mental Deficiency, 80(4), 431–436. Judge, S. L. (1998). Parental coping strategies and strengths in families of young children with disabilities. Family Relations, 47(3), 263–268. Kano, Y., Ohta, M., Nagai, Y., Pauls, D. L., & Leckman, J. F. (2004). Obsessive-compulsive symptoms in parents of Tourette syndrome probands and autism spectrum disorder probands. Psychiatry and Clinical Neurosciences, 58(4), 348–352. King, G. A., Zwaigenbaum, L., King, S., Baxter, D., Rosenbaum, P., & Bates, A. (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome. Child: Care, Health and Development, 32(3), 353– 369. Klepp, O. M., Mastekaasa, A., Sørensen, T., Sandanger, I., & Kleiner, R. (2007). Structure analysis of Antonovsky’s sense of coherence from an epidemiological mental health survey with a brief nine-item sense of coherence scale. International Journal of Methods in Psychiatric Research, 16(1), 11–22. Koniarek, J., Dudek, B., & Makowska, Z. (1993). Kwestionariusz _ Orientacji Zyciowej. Adaptacja The Sense of Coherence Questionnaire (SOC) A. Antonovsky’ego [Questionnaire of life orientation: Adaption of the sense of coherence questionnaire ˛ by A. Antonovsky]. Przeglad Psychologiczny, 36(4), 491–502. Konstantareas, M. M., & Papageorggiou, V. (2006). Effects of temperament, symptom severity and level of functioning on maternal stress in Greek children and youth with ASD. Autism, 10(6), 593–607. Lustig, D. C., Rosenthal, D. A., Strauser, D. R., & Haynes, K. (2000). The relationship between sense of coherence and adjustment in persons with disabilities. Rehabilitation Counseling Bulletin, 43(3), 134–141. Madu, S. N., & Roos, J. J. (2006). Depression among mothers with preterm infants and their stress-coping strategies. Social Behavior and Personality, 34(7), 877–890. Mak, W. W. S., Ho, A. H. Y., & Law, R. W. (2007). Sense of coherence, parenting attitudes and stress among mothers of children with autism in Hong Kong. Journal of Applied Research in Intellectual Disabilities, 20(2), 157–167. Margalit, M., Leyser, Y., & Avraham, Y. (1988a). Subtypes of family climate among kibbutz mothers of disabled children. International Journal of Special Education, 3(2), 101–115. Margalit, M., Leyser, Y., & Avraham, Y. (1989). Classification and validation of family climate subtypes in kibbutz fathers of disabled and non-disabled children. Journal of Abnormal Child Psychology, 17(1), 91–107. Margalit, M., Leyser, Y., Avraham, Y., & Lewy-Osin, M. (1988b). Social-environmental characteristics (family climate) and sense of coherence in kibbutz families with disabled and non-disabled children. European Journal of Special Needs Education, 3, 87–98. Margalit, M., Raviv, A., & Ankonina, D. (1992). Coping and coherence among parents with disabled children. Journal of Clinical Child Psychology, 21(3), 202–209. Moes, D., Koegel, R. L., Schreibman, L., & Loos, L. M. (1992). Stress profiles for mothers and fathers of children with autism. Psychological Reports, 71(3), 1272–1274. Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: A population based study. Pediatrics, 119(5), e1040–e1046. Murphy, M., Bolton, P., Pickles, A., Fombonne, E., Piven, J., & Rutter, M. (2000). Personality traits of the relatives of autistic probands. Psychological Medicine, 30(6), 1411–1424. 123 1494 Oelofsen, N., & Richardson, P. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual & Developmental Disability, 31(1), 1–12. Olsson, M., Hansson, K., Lundblad, A.-M., & Cederblad, M. (2006). Sense of coherence: Definition and explanation. International Journal of Social Welfare, 15(3), 219–229. Olsson, M. B., & Hwang, C. P. (2002). Sense of coherence in parents of children with different developmental disabilities. Journal of Intellectual Disabilities Research, 46(7), 548–559. Olsson, M. B., Larsman, P., & Hwang, P. C. (2008). Relationships among risk, sense of coherence, and well-being in parents of children with and without intellectual disabilities. Journal of Policy & Practice in Intellectual Disabilities, 5(4), 227–236. Pallant, J., & Lae, L. (2002). Sense of coherence, well-being, coping and personality factors: Further evaluation of the sense of coherence scale. Personality and Individual Differences, 33(1), 39–48. Pelchat, D., Lefebvre, H., & Perreault, M. (2003). Differences and similarities between mothers’ and fathers’ experiences of parenting a child with disability. Journal of Child Health Care, 7(4), 231–247. Pisula, E. (2007). A comparative study of stress profiles in mothers of children with autism and those of children with Down’s syndrome. Journal of Applied Research in Intellectual Disabilities, 20(3), 274–278. Piven, J. (1999). Genetic liability for autism: The behavioural expression in relatives. International Review of Psychiatry, 11, 299–308. Piven, J., Palmer, P., Jacobi, D., Childress, D., & Arndt, S. (1997). Broader autism phenotype: Evidence from a family history study of multiple-incidence autism families. American Journal of Psychiatry, 154(2), 185–190. Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and wellbeing in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22(6), 855–864. Renty, J., & Roeyers, H. (2006). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health and Development, 32(3), 371–385. Rodrigue, J. R., Morgan, S. B., & Geffken, G. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19, 371–379. Roothman, B., Kirsten, D., & Wissing, M. (2003). Gender differences in aspects of psychological well-being. South African Journal of Psychology, 33(4), 212–218. J Autism Dev Disord (2010) 40:1485–1494 Sakaguchi, M., & Beppu, S. (2007). Structure of stressors in mothers of preschool children with autism. Japanese Journal of Special Education, 45(3), 127–136. ¨ Saloviita, T., Italinna, M., & Leinonen, E. (2003). Explaining the parental stress of fathers and mothers caring for a child with developmental disability: A double ABCX model. Journal of Intellectual Disability Research, 47(4–5), 300–312. Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(Suppl 1), 114–121. Sharpley, C. F., Bitsika, V., & Efremidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety and depression among parents of children with autism. Journal of Intellectual and Developmental Disability, 22(1), 19–28. Sivberg, B. (2002a). Coping strategies and parental attitudes. A comparison of parents with children with autistic spectrum disorders and parents with non-autistic children. International Journal of Circumpolar Health, 61(Suppl 2), 36–50. Sivberg, B. (2002b). Family system and coping behaviors. Autism, 6(4), 397–409. Tobing, L. E., & Glenwick, D. S. (2006). Predictors and moderators of psychological distress in mothers of children with pervasive developmental disorders. Journal of Family Social Work, 10(4), 1–22. Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviour exhibited by children with autism and maternal stress. Journal of Intellectual & Developmental Disability, 29(1), 16–26. Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19(5), 251–260. Wachtel, K., & Carter, A. S. (2008). Reaction to diagnosis and parenting styles among mothers of young children with ASDs. Autism, 12(5), 575–594. Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism and children with mental retardation. Autism, 6(1), 115–130. World Health Organization (1992). Manual of the international statistical classification of the diseases, and related health problems (10th ed.). Geneva: WHO. Yamada, A., Suzuki, M., Kato, M., Suzuki, M., Tanaka, S., Shindo, T., et al. (2007). Emotional distress and its correlates among parents of children with pervasive developmental disorders. Psychiatry and Clinical Neurosciences, 61(6), 651–657. 123 Reproduced with permission of the copyright owner. Further reproduction prohibited without permission.

You May Also Find These Documents Helpful

  • Good Essays

    Autism spectrum condition affects a range of different individuals and is a spectrum condition and affects people in a number of different ways. It is important when supporting an individual with autism to identify and recognise each individuals’ abilities – what they can do successfully, needs – what the individual needs support with, strengths and gifts – what the individual is good at, what they have a real talent in, and interests – what is motivating for the person.…

    • 5611 Words
    • 23 Pages
    Good Essays
  • Better Essays

    Comp II Final Project

    • 1628 Words
    • 7 Pages

    Many adults with Autism still live at home. As they are closeted away in their homes, with them are their Caregivers. The Caregivers now have a 24 hour position, with no relief in sight. As time passes, these Caregivers become overwhelmed, depressed and their health declines.…

    • 1628 Words
    • 7 Pages
    Better Essays
  • Good Essays

    The article ’’ The Kids Who Beat Autism” written by Ruth Padawer describes two cases where the children with relatively same age and treatment for autism. Their parents met at a conference in Newport and states that they no longer respond to the family and have almost same symptoms and behavioral pattern. Both families made a decision to ask the help from A.B.A specialist from the University of California. The specialist spend and direct 35 hours per week, one-on-one sessions with each of the patient. After a…

    • 803 Words
    • 4 Pages
    Good Essays
  • Powerful Essays

    Leahy, C. &. (2007). Use of the resiliency model of family stress, adjustment and adaptation by rehabilitation counselors. The Journal of Rehabilitation , 44-46.…

    • 1835 Words
    • 6 Pages
    Powerful Essays
  • Satisfactory Essays

    NMI Chapter 1

    • 422 Words
    • 2 Pages

    1. How are inclusive practices being utilized in your school? Students with IEPs receive full inclusion. Majority of our students’ LRE’s are 80% or more of the day in the regular education classrooms.…

    • 422 Words
    • 2 Pages
    Satisfactory Essays
  • Good Essays

    Van Ijzendoorn, M. H., Rutgers, A. H., Bakermans-Kranenburg, M. J., Van Daalen, E., Dietz, C., Buitelaar, J. K., & ... Van Engeland, H. (2007). Parental Sensitivity and Attachment in Children With Autism Spectrum Disorder: Comparison With Children With Mental Retardation, With Language Delays, and With Typical Development. Child Development, 78(2), 597-608. doi:10.1111/j.1467-8624.2007.01016.x. Retrieved December 17, 2010 , from Kaplan University Library website: http://web.ebscohost.com.kaplan.uah.edu/ehost/detail?hid=17&sid=cf25c7a8-56f2-4f53-9ae3-234df0f84247%40sessionmgr4&vid=4&bdata=JnNpdGU9ZWhvc3QtbGl2ZQ%3d%3d#db=aph&AN=24440666…

    • 997 Words
    • 4 Pages
    Good Essays
  • Powerful Essays

    Evidence Based Practices

    • 3433 Words
    • 14 Pages

    Autism and ASD (Autism Spectrum Disorders) has been one of the biggest misunderstood and misdiagnosed disorders. Working with children with autism presents different obstacles in regards to dealing with emotional, aggressive and depressive behaviors. This paper will show how Evidence-Based Practices can be highly effective when dealing with children with autism in the classroom, community and in the home. Further the definition of autism, ASD and what constitutes a medical/mental health diagnosis will be investigated also certain behavior problems that plague this population will be identified. In addition, Evidence-Based Practices will be explored…

    • 3433 Words
    • 14 Pages
    Powerful Essays
  • Good Essays

    Research has shown that parents of children with disabilities or special needs have heavier caregiving burdens than parents of children with no special needs, due to the specific physical or psychological needs of their child, which often increases parents’ stress levels (Morris, 2011).…

    • 1084 Words
    • 5 Pages
    Good Essays
  • Powerful Essays

    Olsson, M. B., & Hwang, C. P. (2008, July 7). Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45, 535-543. http://dx.doi.org/10.1046/j.1365-2788.2001.00372.x…

    • 1793 Words
    • 8 Pages
    Powerful Essays
  • Powerful Essays

    It is very important to show new findings and show that early intervention is beneficial for ASD children. Moreover, it is important to show the impact of reducing the eligible are for access to government funded to IBI treatment. According to Karst & Vaughan Van Hecke, suggested in the article “Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention Evaluation”, that parents with ASD children show effects in stress level that appears even before the child has been diagnosed with ASD, furthermore they mentioned that levels do not get better as their children are diagnosed, since they have to incur in treatment expenses…

    • 2226 Words
    • 9 Pages
    Powerful Essays
  • Powerful Essays

    Inclusion In Education

    • 1097 Words
    • 5 Pages

    Autism is a developmental disorder, which is “diagnosed on the basis of early-emerging social and communication impairments, and rigid and repetitive patterns of behaviour and interests.” The extent that these are displayed vary with age and ability, therefore an autistic spectrum was introduced to “recognise this diversity” (Frith et al., 2005, p.786). Some examples of the difficulties children with ASDs face are apparent aloofness, poor grasp of abstract concepts and feelings, as well as the difficulty to deviate from one way of doing things (Bowen et al., 2006, p.9). These examples alone exhibit why there is controversy regarding whether children with ASDs should be educated in mainstream or special schools.…

    • 1097 Words
    • 5 Pages
    Powerful Essays
  • Good Essays

    Unfortunately it becomes, instead of something that can bind a couple together, a factor that causes stress. Extreme stress and often the marriage is a victim of that stress and fails. But why? Is it necessary to choose between our marriage and our child with autism? Or are we missing something in this daily struggle against this disability that has kidnapped our child.…

    • 1792 Words
    • 8 Pages
    Good Essays
  • Better Essays

    Harris, V., & McHale, S. (1989) Family life problems, daily care giving activities and the psychological well being of mothers of mentally retarded children. American Journal or Mental Retardation, 94, 231-239.…

    • 1786 Words
    • 8 Pages
    Better Essays
  • Powerful Essays

    For the fathers, stress is one impact they face. “Although not all fathers considered the experience raising a child with disabilities as stressful, those who did have high stress perceived their children as less adaptable and acceptable, as well as more demanding, moody, and distractible. Fathers with high stress also had increased depression and decreased attachment to the child.”. Fathers are sometimes…

    • 1747 Words
    • 7 Pages
    Powerful Essays
  • Good Essays

    Children with intellectual disability face challenges that affect all the family members and both internal and external relationships. Intellectual disability is defined as mental retardation, involves significant either mild or significant impairments in intellectual functioning. It might cause limitations in adaptive behaviour and cognitive reasoning that begin prior to the age of 18 (AAIDD, 2010) . This situation exists even after the context of community environment and mental limitations are measured and considered (Schalock, et al., 2007). Adaptive behaviour such as personal…

    • 460 Words
    • 2 Pages
    Good Essays

Related Topics