SIBLING INTERACTION WHERE ONE IS A DOWN SYNDROME GIRL
TABLE OF CONTENTS
1. Acknowledgment 2. Declaration 3. Abstract 4. Research Questions and Data Collection Methods 5. Contextual Study 5.1 Introduction 5.2 History 5.3 Learning and Development 6. Analysis and Findings 6.1 Research Question 1 6.2 Research Question 2 6.3 Research Question 3 6.4 Research Question 4 7. Conclusion 8. Recommendations 8.1 Recommendations for siblings 8.2 Recommendations for parents. 9. Synopsis 10. Appendix 11. Reflective Note 20 12. Brief for Degree Project
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Any attempt at any level cannot be satisfactorily completed without the support and guidance of learned people. I would like to express my gratitude to Ms. Ramesh Kaur for his unstinting support, motivation and valuable guidance at every stage of this research. I am also thankful to my parents who have rendered their whole hearted support at all times for the successful completion of this project.
This is my original work and to the best of my knowledge and understanding, none of this has been done earlier by any other person. No content has been plagiarized but has been used for reference with proper citation at the end of the document.
The relationship between siblings is special and unique. Add a disability and this relationship holds even more importance. This paper shows the result of a qualitative research that aims to find out the impact on the interaction between the special child who was born with Down Syndrome and their sibling. When a special child is born, it has a profound effect on the family. The reaction of the non-disabled child can affect the over all development of both the siblings. Like parents, the sibling too is affected with the needs of a special child and experiences a wide range of emotions and concerns. The aim of the research is to answer the following questions: i) ii) iii) iv) How does the relationship affect the non-disabled sibling? How does the relationship affect the special child? How are the differences in ability between the non-disabled sibling and special child explained to the latter? Does the gender and age affect the relationship?
The research was conducted by taking semi-structured interviews of families of girls born with Down Syndrome and observing the interaction between the siblings. The paper concludes with the analysis of the data collected and recommendations for the non-disabled sibling and parents. Through this research I found out the importance of this interaction and how it affects personalities of both the siblings. The normal sibling learns to be more patient and responsible. Majority of the siblings share a healthy relationship and the non-disabled sibling is aware of his/her future responsibilities in terms of taking care after the parents are unable to or not there anymore.
RESEARCH QUESTIONS AND METHODOLGY
1. How does the relationship affect the non-disabled sibling? 2. How does the relationship affect the special child? 3. How are the differences in ability between the non-disabled sibling and special child explained to the latter? 4. Does the gender and age affect the relationship?
The research was done by conducting semi-structured interviews with 6 sets of parents and 5 siblings. The families belong to the upper-middle class section and the average age the girls with Down Syndrome is 22. The siblings range from the ages of 11-26 out of which 2 were boys. The sibling interaction was observed and supporting literature was read.
Down Syndrome (also called Trisomy 21) is a genetic disorder caused by the presence of an extra chromosome 21. This extra genetic material causes the milestones to be delayed and the development process is slower than that in typical children. At the time of conception, the fetus...
References: (1) Down Syndrome Author: Sietske N. Heyn, PhD Available at http://www.medicinenet.com/down_syndrome/article.htm (2) Sexuality in Down Syndrome By: Dr. William Schwab, MD Available at http://www.aim-high.org/about-ds-topmenu-43/adult-packet/144sexuality-in-down-syndrome (3) History of Down Syndrome and its treatment Available at http://www.cdadc.com/ (4) Down Syndrome- Causes and symptoms Available at http://bodyandhealth.canada.com/channel_condition_info_details.asp?channel_i d=9&relation_id=10860&disease_id=44&page_no=1 (5) Down Syndrome Development Available at http://www.about-down-syndrome.com/down-syndromedevelopment.html (6) Social development for individuals with Down Syndrome Available at http://www.down-syndrome.org/information/social/overview/
Cuskelly,Monica and Gunn,Pat (2003), Sibling Relationships of Children With Down Syndrome: Perspectives of Mothers, Fathers and Siblings, American Journal On Mental Retardation, USA, p234 Damiani, V. B. (1999). Responsibility and adjustment in siblings of children with disabilities: Update and review. Families in Society: The Journal of Contemporary Human Services, 80, 34–41.
Adhira Agrawal , Communication Design, Pearl Academy of Fashion, Sibling Interaction Where One Is A Down Syndrome Girl
BIBLIOGRAPHY WEBSITES • DOWN SYNDROME AND OTHER DISABILITIES Available at http://www.childrenshospital.org/newsroom/Site1339/mainpageS1339P1subleve l225.html • DOWN 'S SYNDROME AND SIBLING LOVE Available at http://query.nytimes.com/gst/fullpage.html?res=990CE0D71F39F93AA25752C1 A967948260 • DOWN SYNDROME AND SIBLINGS Available at http://www.about-down-syndrome.com/down-syndromesiblings.html • • • • http://www.down-syndrome.org/research-highlights/2043/ http://elliestumbo.blogspot.com/2010/02/effect-down-syndrome-has-onsiblings.html http://www.experienceproject.com/groups/Have-A-Sibling-With-DownSyndrome/15711 http://www.downsyn.com/stories.php
BOOKS AND PUBLICATIONS • • • Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters By Brian Skotko, Susan P. Levine Brothers and Sisters of Disabled Children by Peter Burke Living with a Brother or Sister with special needs: a book for sibs By Donald Joseph Meyer, Patricia F. Vadasy Word Count of the report: 4000 words
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