Preview

Genomics: Confidentiality And Privacy Issues

Good Essays
Open Document
Open Document
838 Words
Grammar
Grammar
Plagiarism
Plagiarism
Writing
Writing
Score
Score
Genomics: Confidentiality And Privacy Issues
Genomics: Confidentiality and Privacy Issues
In the Workplace and Insurance Companies
Carolina Atai
Molloy College
Genomics: Confidentiality and Privacy Issues
In the Workplace and Insurance Companies
According to Hinkle and Cheever, “genomics is the study of the human genome, including gene sequencing, mapping, and function” (p. 107). The sequencing of the entire genome was completed in 2003 and is being used today to develop treatments of both rare and common diseases. The Genomic National Human Genome Research Policy Roundtable Summary stated
Genomic medicine is a powerful way to tailor health care at the individual level by using patients' genomic information. By identifying the genetic factors associated with disease, it is possible …show more content…
As Badzek, Henaghan, Turner, and Monsen (2013) state, genetic testing may reveal health risks to the patient and, as a result, their family members and is where an ethical dilemma may result. According to the ANA Code of Ethics, currently a nurse does not have the legal right to inform the family of a particular genetic disease and by doing so, would break the client-nurse confidentiality. However, as educators it is also the role of a nurse to educate a patient and speak with them about the significance of a particular genetic disease and how it could possibly impact their family’s health and well …show more content…
and Monsen, R. (2013), Ethical, Legal, and Social Issues in the Translation of Genomics Into Health Care. Journal of Nursing Scholarship, 45: 15–24. doi: 10.1111/jnu.12000
Hinkle, J., & Cheever, K. (2014). Management of Patients With Chest and Lower Respiratory Tract Disorders. In Brunner & Suddarth's Textbook of Medical-surgical Nursing, 13th Ed. Lippincott Docucare, 18-month Access North American Edition. (13th ed., Vol. 1, p. 107). Lippincott Williams & Wilkins.
Lea, D. (2008). Genetic and Genomic Healthcare: Ethical Issues of Importance to Nurses. Retrieved November 14, 2015, from http://www.nursingworld.org/mainmenucategories/anamarketplace/anaperiodicals/ojin/tableofcontents/vol132008/no1jan08/geneticandgenomichealthcare.html
National Human Genome Research Institute. (2007b). Genetic discrimination. Retrieved on November 14, 2015 from the National Human Genome Research Institute,www.genome.gov/10002077
National Human Genome Research Institute. (2005). NHGRI Policy Roundtable Summary.The future of genomic medicine: Policy implications for research and medicine. Retrieved on November 14, 2015 from the National Human Genome Research
Continue Reading
View Writing Issues

You May Also Find These Documents Helpful

  • Powerful Essays

    The Pros And Cons Of Personalized Medicine
    • 1774 Words
    • 8 Pages

    The Pros And Cons Of Personalized Medicine

    Ruth Chadwick, the author of “Drug Discovery Today: Therapeutic Strategies”, revealed her concerns for the personalized medicine movement, “The move towards personalized medicine may disadvantage some patients in some social contexts, by shifting the allocation of resources in the health care system. Risks also surround the increasing accumulation of health data that goes hand in hand with personalized medicine” (Chadwick 171). Chadwick refers to the collection of personal DNA test information, “accumulation of healthcare data” as a risk; however, with the increased informational knowledge brought in by personalized medicine testing, cancer or other incurable diseases could benefit from an increased database of information. The risks mentioned by Chadwick may elude to an ethical argument for the increased concerns as personalized medicine comes to mainstream healthcare. Ideally, the increase in genetic testing among individuals through the implementation of personalized medicine would bring in massive amounts of information regarding the precursors for diseases and cancer allowing medical attention to become more accurate.…

    • 1774 Words
    • 8 Pages
    Powerful Essays
    Read More
  • Good Essays

    Ethics and Minors Rights to Refuse Medical Testing
    • 941 Words
    • 4 Pages

    Ethics and Minors Rights to Refuse Medical Testing

    Clearly there are legal and ethical issues that exist when it comes to Minors’ rights to refuse medical tests requested by their parents. In the United States, the legal system generally gives complete authority for medical decision making to parents, giving way to ethical issues that arise when caring for mature minors who are refusing medical procedures requested by their parents. In case study 1, the parents are requesting that their teenage daughter Camilla undergo invasive medical testing that she is opposed to. Because Camilla is a mature minor, the most important ethical issues that exist in this case is the violation of Camilla’s right to autonomy and self-determination, and nonmaleficence because she is both psychologically and physically opposed to the genetic testing requested by her parents. The ethical principles that should be used to help guide the care of Camilla, her family, and the healthcare providers involved in this case are Autonomy and Nonmaleficence.…

    • 941 Words
    • 4 Pages
    Good Essays
    Read More
  • Good Essays

    Public Health Ethical Principles
    • 464 Words
    • 2 Pages

    Public Health Ethical Principles

    To fully combine the ethical troubles of the public health in the field of public health while at the same time into the field of the bioethics (Lindert & Potter, 2015).” The focus of the population is imperative because it allows awareness of prevention and control. Medical ethics is also imperative because it concerns more with the essentials of an individual and their outcomes (Boylan, M,…

    • 464 Words
    • 2 Pages
    Good Essays
    Read More
  • Satisfactory Essays

    Why Is Gene Patenting Wrong
    • 63 Words
    • 1 Page

    Why Is Gene Patenting Wrong

    Since the first two human gene patents, now approximately 20% of human genes have been patented within the past 30 yrs. With all the debate against gene patenting claiming that it is wrong as with science it limits the research aspect and with business it limits innovations and opportunities that could be created by research to diagnose, detect and find treatments for diseases.…

    • 63 Words
    • 1 Page
    Satisfactory Essays
    Read More
  • Powerful Essays

    Can Children Under 10 Commit Morally Virtuous Rights
    • 3255 Words
    • 14 Pages

    Can Children Under 10 Commit Morally Virtuous Rights

    Bibliography: Beauchamp and Childress. (2002). Ethics of Care. Principles of Biomedical Ethics. Retrieved August 22, 2009 from http://caae.phil.cmu.edu/cavalier/80130/part2/II_7.html…

    • 3255 Words
    • 14 Pages
    Powerful Essays
    Read More
  • Good Essays

    Personal Genomes for Drug Discovery
    • 944 Words
    • 4 Pages

    Personal Genomes for Drug Discovery

    The implications of personal genomes for drug discovery can be significant. Now since we know the DNA sequence of our species, we can develop drugs specifically for different patient genotypes. This would mean drugs could be specifically tailored towards individuals to ensure they are getting the best treatment possible (Chadwick, 2011). Also drugs that do not work on normal patients could be, repurposed to be tailored to patients with rare genotypes. Furthermore we could use Genome-wide association studies to locate sequences that could cause variation in drug response or susceptibility to toxicity significantly improving dosage and designs of drugs (Daly, 2010). Lastly understanding polymorphisms in humans specifically in CYPs could reduce adverse drug reactions in low therapeutic index drug such as warfarin, as we could tailor the right dose to the individual possibly reducing the amount of drugs that fail due to toxicity (Huang, 2006). With the personal genome, there is a possibility for drugs to be modified to the individual however although the concept seems simple unfortunately the process is extremely complex.…

    • 944 Words
    • 4 Pages
    Good Essays
    Read More
  • Better Essays

    Why Medical Professionals Should Be Present When Patients Receive Their Genetic Testing Results?
    • 704 Words
    • 3 Pages

    Why Medical Professionals Should Be Present When Patients Receive Their Genetic Testing Results?

    Every second could count in saving a patients life. This is why patients need to be able to act quickly. If a medical professional is involved in genetic testing, this would mean that the patients save time in many aspects. Opposition to the idea of involving a medical professional or a genetic counselor would say that it is private information, and that doctors should not be required to read someone’s DNA. Though it is very true someone’s DNA should be private and personal, doctors can be, and were trained to be trusted. It goes all the way back to Hippocrates in the 5th century B.C.E. when he created The Hippocratic Oath. It is still used by most physicians today, though they recite an updated version, it swears to keep all patient information private. Along with the legal idea of a Physician-Patient Confidentiality, doctors should be trusted with the genetic testing because they want to help. The doctors want to act and help provide next steps for the patient.…

    • 704 Words
    • 3 Pages
    Better Essays
    Read More
  • Better Essays

    Pros And Cons Of Direct To Consumer Genetic Testing
    • 1618 Words
    • 7 Pages

    Pros And Cons Of Direct To Consumer Genetic Testing

    Direct-to-consumer genetic testing products have been on and off the shelves in shopping centers for as long as the product has been around. The interest in one’s genetic background has been a prevalent topic for many years. With a cheap price and easy access, the testing products have attracted many consumers to give it a try. Even though there are benefits to direct-to-consumer genetic testing, there are also negative outcomes that can be a result. For this reason, there are many ethical dilemmas that cause these products to be on and off shelves. Since direct-to-consumer genetic testing products are so controversial and baear great risks, they should be off the shelves, and left to medical doctors and practitioners. By learning about the…

    • 1618 Words
    • 7 Pages
    Better Essays
    Read More
  • Good Essays

    Do We Use Genetic Testing Ethically To Improve Society?
    • 292 Words
    • 2 Pages

    Do We Use Genetic Testing Ethically To Improve Society?

    The technology surrounding genetic control has advanced tremendously in the last few decades. Chapter 3 in the Bioethics book discusses the issues involved in the testing of genes associated with various diseases. How the identification of these disease causing genes and the diagnoses of prenatal disease inclinations can be used ethically to improve society is called into question.…

    • 292 Words
    • 2 Pages
    Good Essays
    Read More
  • Satisfactory Essays

    Genetic Information Research Paper
    • 387 Words
    • 2 Pages

    Genetic Information Research Paper

    Knowing genetic information can be helpful to different individuals under different circumstances. However, there are still people in the society who will abuse their knowledge of the genetic information that they know.…

    • 387 Words
    • 2 Pages
    Satisfactory Essays
    Read More
  • Satisfactory Essays

    The Controversy Of Genetic Testing
    • 620 Words
    • 3 Pages

    The Controversy Of Genetic Testing

    Genetic tests are done by analysing small samples of blood or body tissue. Therefore they can determine whether people carry the genes for certain inherited diseases. Genetic testing is continuously developing and has now developed enough that doctors can often accurately pinpoint missing of defective genes. This is crucial in the prevention of inherited disorders and giving parents around the world a chance to raise a healthy child. There are also many reasons why gene testing should not be available including possible inaccuracy in genetic testing.…

    • 620 Words
    • 3 Pages
    Satisfactory Essays
    Read More
  • Satisfactory Essays

    Personalized Medicine
    • 560 Words
    • 3 Pages

    Personalized Medicine

    Personalize Medicine has great influence on the way we think towards identifying and managing healthcare problems and diseases. Personalize medicine aids in providing an in depth analysis of hereditary differences within genetically difference of people and also how it may affect the healthcare that they may need. With technology being modified daily the advancements in technology may improve the levels of personalize medicine by, giving details on someone metabolic, genetic, and proteinaceous profile that in the future be used to customize individual medical care. Personalize medicine could also be used in the development of companion diagnostics, which use molecular to measure the levels of genes, mutation, and proteins that can be used in the provision of specified therapy that fits the patient health condition(Science daily,2010). Our DNA is the makeup of us individually to let us know who we are. DNA and Genes have a major role in our development they can determine how one can react to medication or treatment. Research are trying to identify the genetic variations to be able to match it up with a response to a particular medication to be able to develop a personalize medicine approach to medicine (Mayo Clinic).…

    • 560 Words
    • 3 Pages
    Satisfactory Essays
    Read More
  • Good Essays

    Genetic Testing Controversies
    • 490 Words
    • 2 Pages

    Genetic Testing Controversies

    Controversies today that genetic testing today faces is with the privacy, consents, equity and discrimination. The privacy of the information that is found may not be confidential between the patient and the doctor it may also be revealed to other people that are not involved in the issue. The controversies with consent are that should the insurance companies be allowed to have the information of medical records and family histories before granting permission to anything. (Friesen, Tim. The Genetic Testing Controversy). The costs of some of these genetic tests are very expensive, some costing more than $1000.…

    • 490 Words
    • 2 Pages
    Good Essays
    Read More
  • Good Essays

    Genetic Testing Argumentative Analysis
    • 501 Words
    • 3 Pages

    Genetic Testing Argumentative Analysis

    In 2015, Dr. Mauro Bertolotti wrote an article on genetic testing entitled “Opportunities, Risks, and Limitations of Genetic Testing: Looking to the Future From Patients' Point of View”. This issue of Mayo Clinic Proceedings presents the current and future problems and challenges of constantly innovating genetic testing. According to Dr. Bertolotti, “The novelty of genetic testing procedures and results interpretation, formal studies of patients' experiences with genetic testing, and their corresponding reactions to test results, are still limited.” He continues to highlight a few of the problem-areas or shortcomings that may accompany genetic testing. Emotional effects, ethical and regulatory concerns, and overall lack of knowledge are the main points of his argument. Bertolotti asserts that we need to take these perspectives into consideration when researching, designing, discussing, and administering these new types of genetic tests,…

    • 501 Words
    • 3 Pages
    Good Essays
    Read More
  • Satisfactory Essays

    Article 1
    • 720 Words
    • 3 Pages

    Article 1

    Since the discovery of the Human Genome Project, we have been very successful with the use of this magnificent map. However, the commercialization of the genetic science is ahead of the real genetic science nowadays. People want to know everything they can with this DNA code even though the science are not currently supporting its thesis. But the scientists are making major breakthrough with the Genome because this past summer, the Food and Drug Administration gave a first go with the genetic test on patient with a drug called warfarin, which is a blood-thinning drug. The FDA wanted to figure out the best dosage for each and every individual to be more efficient. We are all hoping for someday when just a simple genetic analysis could tell an individual their best diet possible to live a long life.…

    • 720 Words
    • 3 Pages
    Satisfactory Essays
    Read More

Related Topics