Unit 332 Support individuals at the end of life
1.1 The main legal requirements and agreed ways of working relating to end of life care are: 1. The Department of Health’s 2008 End of Life Care Strategy that provides a framework aimed at promoting high quality care for all adults approaching the end of life in all care settings. It sets out what adults reaching the end of their lives, and their carers can expect from the services provided to them. One of the key aims is to ensure as far as possible their needs and preferences for future care are met. The common factors include: Being treated as an individual
Being without pain and other symptoms
Being in familiar surroundings
Being in the company of close friends and family
2. The National Institute for Clinical Excellence (NICE) sets out the End of Life Care Quality Standard. This quality standard defines clinical best practice within end of life care. It provides specific, concise quality statements, measures and audience descriptors to provide the public, health and social care professionals, commissioners and service providers with definitions of high-quality care. This quality standard covers all settings and services in which care is provided by health and social care staff to all adults approaching the end of life. This includes adults who die suddenly or after a very brief illness. 3. The Care Quality Commission that states that people who use services who are at the end of their life will have their care, treatment and support needs met because wherever possible. They are involved in the assessment and planning for their end of life care and are able to make choices and decisions about their preferred options, particularly those relating to pain management. There are systems in place to ensure further assessments by specialist palliative care services and other specialists where needed. They have information relating to death and dying available to them, their families or those close to them. They are able to have those people who are important to them with them at the end of their life. They have a dignified death, because staff are respectful for their needs for privacy dignity and comfort. The plan of care records their wishes with regards to how their body and possessions are handled after their death and staff respect their values and beliefs. 4. General Medical Council sets out the guidance on End of life care. Patients who are approaching the end of their life must be given the same quality of care as all other patients. They must be treated with dignity, respect and compassion, especially when they are facing difficult situations and decisions about care. Carers must respect their privacy and right to confidentiality. Guidance tells that some groups of patients can experience inequalities in getting access to healthcare services and in the standard of care provided. It is known that some older people, people with disabilities and people from ethnic minorities have received poor standards of care towards the end of life. This can be because of physical, communication and other barriers, and mistaken beliefs or lack of knowledge among those providing services, about the patient’s needs and interests. Equalities, capacity and human rights laws reinforce your ethical duty to treat patients fairly. Some other legislations and agreed ways of working are set out in: community Care Act 1990, Health Act 1995, Dignity Challenge. 1.2 Legislations and guidance relating to caring for individuals in their end of life informs carers that choices and priorities of the individual are at the centre of planning and delivery. Care delivered must be at the highest standards. Care workers should use an effective, straightforward, sensitive and open communication between individuals, families, friends and workers. Communication reflects an understanding of the significance of each individual’s beliefs and needs. Care must be delivered through close multi- disciplinary...
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