Dead Star

Topics: Lorenzo Odone, Augusto and Michaela Odone, Adrenoleukodystrophy Pages: 3 (1028 words) Published: August 22, 2013
MTh 1:30 – 3:00


Based on a true story, the film begins portraying Lorenzo Odone leading his chief life on the Comoro Islands where he learns, plays and enjoys interacting with other people in the place. Lorenzo is the son of Michaela and Augusto Odone. At the age of 6, things start to go wrong with him. He begins to have strange memory problems, blackouts, he collapses, he raves and he loses his hearing. So his concerned parents got worried and take him to the doctor. When Augusto and Michaela talked to the doctor, they were told that Lorenzo has been diagnosed with the childhood cerebral form of adrenoleukodystrophy (ALD), a progressive degenerative nervous system disorder. This disease has no cure and quite rare. The doctor explained to Augusto and Michaela the slowly arising symptoms that will be experienced by their son until he will be disabled and die in 2 years. The parents’ hearts were shattered upon hearing all those especially for Michaela when she found out that his son got this disease from her because mothers, who are the only carriers, pass this to their sons. They took Lorenzo to one of the world's foremost experts but bypass the slow lane of medical research. They decided to be independent to medical science because they believe that the time remaining will not be enough if they would still wait for ongoing medical examination for ALD. They take matters into their own hands and start their own investigation of the disease even though neither has a scientific or medical background. The couple spends countless hours in medical libraries reading journal articles and talking to researchers and doctors. Although doctors tell the Odones there’s no hope for their son, Augusto tries to find out all he can about the disease. He keeps on discussing with his wife how to reduce and normalize these fatty acids that hinder Lorenzo’s regular body metabolism. They even make Lorenzo go through a diet which inhibits him the intake...
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