New Born Screening Act

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Newborn Screening Act
AN ACT PROMULGATING A COMPREHENSIVE POLICY
AND A NATIONAL SYSTEM FOR ENSURING NEWBORN SCREENING

Republic Act No. 9288
AN ACT AUTHORIZING THE LEGACY OR DONATION OF ALL OR PART OF A HUMAN BODY AFTER DEATH FOR SPECIFIED PURPOSES

Introduction
In the Philippines, cases of genetic disorder have increased as the population rises. Some of these inheritable conditions are already present at birth and many others are not recognized until the child gets older. One factor is that after giving birth, some parents do not consider on having their babies be checked up for the presence of abnormalities.

“Newborn screening (NBS) is a public health program aimed at the early identification of infants who are affected by certain genetic/metabolic/infectious conditions. Early identification and timely intervention can lead to significant reduction of morbidity, mortality, and associated disabilities in affected infants. NBS in the Philippines started in June 1996 and was integrated into the public health delivery system with the enactment of the Newborn Screening Act of 2004 (Republic Act 9288).” –DOH Philippines

Objectives:
1. To ensure that every newborn has the right to undergo newborn screening test. 2. To make sure that the newborn screening test will determine any genetic disorders. 3. To build a better newborn screening system for the whole population. 4. To ascertain that all health care providers knows the advantages of the newborn screening and their responsibilities regarding newborn screening. 5. To assure that parents are aware of their responsibility on the upbringing of their own child to good health and full development.

Republic of the Philippines
Congress of the Philippines
Metro Manila
Twelfth Congress
Third Regular Session

Begun and held in Metro Manila, on Monday, the twenty-eight day of July, two thousand three. Republic Act No. 9288
April 07, 2004
AN ACT PROMULGATING A COMPREHENSIVE POLICY AND A NATIONAL SYSTEM FOR ENSURING NEWBORN SCREENING

Be it enacted by the Senate and House of Representatives of the Philippines in Congress assembled: ARTICLE 1
GENERAL PROVISIONS

Section 1. Short Title. - This Act shall be known as the "Newborn Screening Act of 2004."

Section 2. Declaration of Policy. - It is the policy of the State to protect and promote the right to health of the people, including the rights of children to survival and full and healthy development as normal individuals. In pursuit of such policy, the State shall institutionalize a national newborn screening system that is comprehensive, integrative and sustainable, and will facilitate collaboration among government and non-government agencies at the national and local levels, the private sector, families and communities, professional health organizations, academic institutions, and non-governmental organizations. The National Newborn Screening System shall ensure that every baby born in the Philippines is offered the opportunity to undergo newborn screening and thus be spared from heritable conditions that can lead to mental retardation and death if undetected and untreated.

Section 3. Objectives. - The objectives of the National Newborn Screening System are: 1) To ensure that every newborn has access to newborn screening for certain heritable conditions that can result in mental retardation, serious health complications or death if left undetected and untreated; 2) To establish and integrate a sustainable newborn screening system within the public health delivery system; 3) To ensure that all health practitioners are aware of the advantages of newborn screening and of their respective responsibilities in offering newborns the opportunity to undergo newborn screening; and 4) To ensure that parents recognize their responsibility in promoting their child's right to health and full...
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