Professor: Dr. Faye Ran
July 10, 2012
The Sickle Cell Thalassemia Patients Network
1139 St. John’s Place
Brooklyn, NY 11213-2617
Type of Grant maker: Public Charity
IRS Exemption Status: 501(c) (3)
Financial Data (yr. ended 2012 can’t find)
990: 2011 2010 2009 2008 2007 2006 2005 2004 2003 2002
Background: Established in 1989 in Brooklyn, NY
Limitations: Giving primarily in the Brooklyn, NY area
Purpose and Activities: Dedicated to improving the quality of life for individuals and their families living with sickle cell disease, thalassemia, and other hemoglobin variants providing services that will help to reduce the negative physical, emotional, social, and economic impact of this debilitating blood disorder.
SOCIAL JUSTICE ADVOCACY
In the pursuit of influencing outcomes, including public policy and resource allocation decisions within political, economic and social systems and institutions that directly affect people’s current lives. I have chosen a medical issue that needs a different approach in the way of change to be brought to society in a form of social injustice advocacy.
Sickle Cell Disease (SCD) is the most common inherited blood disorder in the United States, affecting 70,000 to 80,000 Americans. Statistics shows that the disease is estimated to occur in 1 in 500 African Americans and 1 in 1,000 to 1,400 Hispanic Americans. So because of this data, it is extremely vital to provide the much needed education on how to deal with sickle cell disease and how it impacts families. In addition to uncovering the underlying prejudices, attitudes and supplementary needs of those stricken with sickle cell anemia. Sickle Cell Thalassemia Patients Network (SCTPN) began in 1989 at Brooklyn Jewish Hospital (now known as Interfaith Medical Center) located in Brooklyn,...