Hospice Care Needs Assessment

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Assessing the Need for Hospice Care and Hospice Facilities for Terminally Ill AIDS Patients in Namibia

By:

Karin Nasheya

ACKNOWLEDGEMENTS

The researcher would like to express gratitude and appreciation to:

Individuals (and their families) who participated in the study and who gave so generously of their time and thoughts about their experience of caring for terminally ill AIDS patients, given the sensitivity of the subject.

Research assistants (data collectors) who worked under challenging conditions to find individuals who are willing take part in the study and complete the questionnaires.

Support received from family and friends during this challenging period.

ABSTRACT

This study aimed at assessing whether there was a need for hospice are and hospice facilities for terminally ill AIDS patients in Namibia. The study was conducted in the Khomas region of Namibia. A total of 100 people were successfully interviewed from key informants, namely, individuals who have directly taken care of or participated in taking care of at least one terminally ill AIDS patient. This study group was selected because they posses the knowledge and experience of taking care of a terminally ill patient. The subjects responded to various questions related to the needs of terminally AIDS patients such as whether they received training, external support, remuneration, patient’s problems, major challenges encountered, tasks performed, pressing needs, and preferred facility for taking care of terminally ill AIDS patients. The study concludes that cares are overwhelmed by the burden of taking care of terminally ill AIDS patients without sufficient training, assistance, and as well as availability of specialized services or facilities to assist them. The majority indicated they would welcome the introduction of hospice services and hospice facilities to take care of or assist in the taking care of terminally ill AIDS patients.

TABLE OF CONTENTS

ACKNOWLEDGEMENTS2

ABSTRACT3

TABLES7

FIGURES9

ABBREVIATIONS11

CHAPTER 112
1.1INTRODUCTION12
1.2GEOGRAPHIC AND DEMOGRAPHIC INFORMATION15
1.3HEALTH INFORMATION18
1.4THE HIV/AIDS EPIDEMIC UPDATE20

1.5CURRENT CARE AND SUPPORT PROVIDED TO HIV INFECTED AND AIDS PATIENTS IN NAMIBIA25 1.5.1Home Based Care25
1.5.2Introduction and Roll-out of Anti-retroviral Therapy (ART) in Namibia26 1.5.3Prevention of Mother-to-Child Transmission of HIV (PMTCT) in Namibia27 1.5.4Specific Challenges Of Palliative And Terminal Care For Aids Patients28

1.6INTRODUCING HOSPICE CARE AND HOSPICE FACILITIES IN RESOURSE POOR SETTINGS30

1.7LITERATURE REVIEW35
1.7.1Definition of Terms35
1.7.2Literature Review (findings)39

CHAPTER 252
2.1RESEARCH QUESTIONS AND HYPOTHESIS52

2.2RESEARCH DESIGN AND METHODOLOGY53
2.2.1 The Design53
2.2.2Instrumentation53
2.2.3 The Sample54
2.2.4Data Analysis56
2.2.5 Ethical considerations57

CHAPTER 358
3RESULTS58
3.1Demographic Information58
3.1.4Region and Constituency58
3.1.5Gender58
3.1.6Marital Status58
3.1.7Religion59
3.1.8Occupation59

3.2Needs Assessment59
3.2.4Experience in taking care of a terminally ill patient59 3.2.5Any form of training provided in how to take care of a terminally ill patient60 3.2.6External support received to care for a terminally ill patient60 3.2.7Type of support received to take care of a terminally ill patient61 3.2.8Remuneration received for taking care of a terminally ill patient61 3.2.9Did the patient talk to you about his/her problems62

3.2.10Patient’s problems62
3.2.11Major challenges encountered when looking after a terminally ill patient63 3.2.12Tasks performed by caregivers when taking care of a terminally ill patient64 3.2.13Where carers go if patient’s health deteriorates64 3.2.14Pressing needs when taking care of a terminally ill patient65 3.2.15Most preferred facility in which to...
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