The PROUD Consortium PROUD is the name of a group of individuals and organsations brought together by Sharon Baker of The Arthrogryposis Group. Sharon Baker developed the initial idea for the resource and is the lead author. Working with Contact a Family, the consortium came together to raise awareness of the many issues of growing up with a disability. Members of PROUD include disabled adults, parents of disabled children and young people, professionals from Worcestershire’s Health and Education Authorities working with young people with disabilities and representatives from the Association for Spina Bifida and Hydrocephalus and Disability Awareness In Schools. PROUD has consulted widely with disabled adults and parents and carers of young disabled people and children and thanks them for their help in developing this pack. The quotes in this booklet are taken from a survey conducted by The Arthrogryposis Group on growing up with a disability and caring for a disabled child. The Arthrogryposis Group The Arthrogryposis Group (TAG) is a national organisation that supports people who are affected by the physical disability Arthrogryposis Multiplex Congenita. This is a term used to describe stiff and fixed joints and covers a wide range of conditions. Contact a Family Contact a Family provides support, advice and information to families with a disabled child across the UK. It is the only UK charity providing support to parents whatever the medical condition of their child.
Council for Disabled Children The Council for Disabled Children provides a national forum for the discussion, development and dissemination of a wide range of policy and practice issues relating to service provision and support for children and young people with disabilities and special educational needs. Also contributing to this booklet are: National Children’s Bureau The National Children’s Bureau (NCB)... [continues]
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