My nephew has a disease called hemophilia, and conquers it every day. It is a rare disease most people have no idea exists. With this disease he is in and out of the hospital very often, but he definitely never lets it get him down. He makes me so proud being so strong with this sickness.
Hemophilia is a bleeding disorder in which the blood does not clot like it normally should. It is rare for males to be born with it, but even rarer for a female to be born with it. There are two different types of hemophilia, and three different severities. Type A hemophilia is permanent. No cure currently exists for type A. Type B is not permanent. You have a chance of growing out of type B. Scientists have cured type B in a dog for a few years now, so there is hope for a cure. The three different severities are: mild, moderate, and severe. There are several different medicines out there to help the blood clot, but they are extremely expensive. My nephew Jeryn has Type A, severe. With hemophilia there are a lot of negative side effects; you get bruises all over your body, and everything constantly aches. A lot of times whoever has the disease gets bleeds in their joints, and has to stay in the hospital to get it under control.
A hospital is a place many people do not like to go. There are a ton of machines that are very intimidating, along with shots that hurt. People only go because they are sick and in pain. That alone just does not sound appealing in any kind of way. The halls are white and seem like they have no end in sight. When you walk in you smell a mixture of unpleasant fragrances. It just all in all not a very inviting place at all!
My nephew Jeryn has hemophilia, and is constantly in the hospital. He has to get a shot in his veins every day. Despite all of that, he wakes up with a smile on his face. He is seven years old, but he never lets his disease get to him. He begged to play t-ball, even though he knew it would be really hard...
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